Happy Tuesday!
First of all, thank you for the kind words and messages you have sent this week. I really do appreciate it! They mean a lot to me. I apologize for the delayed responses, hopefully you will forgive me! Oh, and I have to give credit to my mom for the subject of this e-mail, she's all about this "lump" in the road joke.
Now that all of the niceties are out of the way, here's what I know... now don't hold your breath hoping I will be super informative, turns out a lot of the details won't come until after surgery. Jerks to that!
Yesterday morning started off with a phone call from Nurse Betty. I thought for sure she was calling to tell me the pathologist mixed up my biopsy results with some poor old woman and turns out this was all a terrible joke (for real, I somehow still keep thinking this could actually happen - denial much?). Nope, no go on that. Betty wanted me in early so they could take images of the right side (as of now, everything looks all good in the hood on that side).
My mom, Matt, and I were at the hospital from about 10:15am-late afternoon. We met with my surgeon, hung out in breast imaging (while I was watching Tiny House Hunters, doing laps, and other exercise moves in the waiting room my mom and Matt had a nice "get to know you" chat), had lunch, met with surgeon again, then met with a nurse (she filled us in on what we missed because we missed the cancer support group meeting). The way the UofM works is they have a "tumor team" (hopefully they're at least half as impressive as the A-team) that looks at your chart and together they make decisions about how to proceed. The tumor team is made up of all the doctors that could possibly be involved in any given cancer case.
Okay, okay, so the deets - as of now they're classifying my cancer as Stage 1. They say my cancer resembles cancer commonly found among old ladies (perhaps all this time working with the oldies finally rubbed off on me...?). Turns out being 33 with old people cancer is much better than being 33 with a fast growing cancer, though! If I were, say, 30 years older they may not be as concerned, however given my age they are not certain of anything. Every time I tried to get the doctor to tell me what the best case scenario was in my future she would play along, but only for so long because there is still so little known about the tumor (kind of like after the biopsy when the doctors made me state my name and from which breast they took the biopsy. I said, "the right." They laughed for a hot second, then turned real serious and made me quick say the correct answer. I'm finding doctors can play along, but they have their limits, which makes sense, I suppose). There are more tests that need to get done (e.g. genetic testing), but as of now the plan is to move forward with a lumpectomy followed by radiation (hopefully not chemo, but again apparently nothing can be determined until after surgery and they know more about the tumor).
Next steps:
1. Meet with reproductive endocrinology & fertility doctor to discuss options regarding treatment post surgery
2. Meet with genetics folks and get tested (seeing as I am a serious outlier, doctors seem to be quite intrigued and need all the information they can get on me)
3. Schedule a surgery date (they'll call in the next couple of days to schedule - surgery will probably about 4 weeks out)
4. During/after surgery they will be able to tell if the cancer has spread and whether radiation or chemotherapy is the best option for post surgery treatments
People have asked if it is okay to tell others about this. Sure, go ahead. Whether or not I like it, I have cancer and it is going to be a large part of my life, in particular for at least the next three months, if not more. Also, I know I can be long winded in e-mails - as you can imagine, there is just so much information and so much going on in my head. I figured today I would send answers to a few questions I think most of you are asking - along with a few anecdotal stories, of course.
Hoot! Hoot!